It turns out I have this crazy affliction called Fibromyalgia. I was diagnosed by my family doctor in 1992 after suffering a severe case of sunstroke. At that time I had never heard of Fibromyalgia and didn’t understand all the complications that come with it.
Fast forward to 2003 and I began having this phantom roaming pain. I had no reason for pain; I didn’t have an injury or an issue, but my leg hurt – there was nothing wrong with my leg, not even a bruise. But, it felt like someone hit me with a baseball bat right on the back of my thigh. I tried to tolerate the pain I would take a Tylenol or an Advil, but I might as well have used a Tic Tac for all the good it did. Then it would be afternoon, and my leg didn’t hurt at all! Now my arm, above my elbow, aches like it had been used as a punching bag. And sleep? Forget that my body talked all night long. Every night.
The worst was not knowing what was wrong with me, and what to do to fix it.
My family doctor had retired from private practice and had gone to an emergency clinic that does not take appointments. So I went on a hunt for a new doctor. That sounds easy, doesn’t it? Not a chance. I spent a lot of time going from doctor to doctor, and when each could find nothing wrong with me, I was told perhaps I didn’t have any pain at all and might need psychiatric help. The final straw was when one doctor diagnosed me with the flu and said I should not worry; it would pass in time. Jeez! Okay, now I am a nut in pain with the flu. I still didn’t have a clue what to do.
So I broke down and found out what day Dr. M (my old family doc) was at her clinic and spent an entire day waiting to see her. I had a lot of respect for Dr. M she was the type of doctor who would prescribe a long walk and quitting smoking for my headaches but would still give me the medication I needed. She had moved on in her practice and was working with Dr. Andrew Weil to use food as a medicine. So she would not take on any patients and referred me to another doctor, Dr. P.
So, now I had a new doc that agreed Fibromyalgia was a real thing and no I was not crazy, and we embarked on a journey to deal with my phantom pain and lack of sleep.
Check back to learn how my struggle has led me here, sharing my story with you, hoping that I can help even one person avoid the mistakes I have made.